Tues 9-25-07

Well Jordy went to the Doc today and I'm sorry to say that she is losing weight. Not a lot, but she has only gained 1 oz. since her surgery. We are going to call the other doctor (the one that was going to do the hernia surgery) tomorrow and see if she can give us any answers to why this is happening.

I think everything is going to be OK but it seems its gonna be a longer road to recovery for her than we expected.

On a good note she still always smiles and loves her sister. They have a blast when we put them together as you saw in the video.

Thanks for checking up on her and I will keep posting as often as I can.

9-20-07 report

I haven't posted for a while because I was waiting to hear from the doctor. We too Jordy to the Dr. last week for a checkup and we got some news we really didn't want. I appears she still has a hole in her heart ,or a leak around the patch they put in I guess would be a better way to put it.

They are not being to detailed in what they tell us other than there is still a murmur and it is leaking around where the patch was put in. What we do not know yet is.......is this going to go away?,will she need another surgery?how long until we know more? etc. etc.

I will post the answers to these questions as soon as we get them ourselves. Other than that she is happy and has good color and is going weight.

We were told last week that is was OK to take her out of the house but as of today's visit we are being told that she might have to have a nurse come in every mth. and give her RSV shots for the next 6 mths. and she was to stay home away from any place where she could get sick.

Anyway we are all doing OK and thanks again to all of you. Sorry I took so long to update the blog.

All is well 9/10/07

Things are going well here. Jordy is drinking bigger bottles than she has even since birth. She is putting away 100 cc bottles. I know that's not much but compared to the 15 to 20 she was doing last week its a lot. I suspect she will start packing on the lbs. pretty quick here in the near future. We will have to get them tattoos to tell the apart when that happens because I use their weight to tell them apart now.

She still has to take pain meds every 4 to 6 hours but that will soon pass and she will be running with the pack if not leading it. Thanks again to everyone who has helped us through this, we appreciate it very much.

Things are going well here. Finally got some good sleep. Jordan is doing well but still requires a LOT of meds and pain killers. I think things are going well enough that I will go back to work a week early. I was planning on taking 3 weeks but will probably go back next Thurs. Anyway just keeping anybody posted who wants to know.
Heres a older video I found when they were first born that I had forgot about.

Home sweet home

I never knew how much I loved my house, never gonna complain again. We are home at last and Jordan has slept the longest she has in a week,we can tell she is glad to be here. Anyway gonna try out a real mattress tonight and get some real sleep. We are all doing fine and we made it home safe. goodnight

Not gonna get into this one too much on the blog but we were dismissed 2 hrs ago but still have no medicine. It seems it would cost too much money to have them filled here and everything is closed today so our nurses are bending over backwards and arguing with our insurance company to figure out a way to get her meds. GOTTA LOVE INSURANCE COMPANYS! Anyway,be home eventually,We hope. P.S no copywrited logos were altered in the making of this post,but we all know who we're talking about here....

Were comin home! 9/3/07

YEEEEHAAAAAA the doc just came in and said we could start packing our stuff up. We should be headed home by noon today. They just gave us a bunch of paperwork of stuff we have to do when we get home and they are filling her 5 perscriptions so it looks like we will be busy for a while even after we get home. I dont care how busy we are as long as I can trade this midevil torture device I'm sleeping on in for my bed,now I know how Quazimoto felt.

Anyway I will keep posting her progress even after we get home until she is 100%. I know we keep saying this but thanks once again to EVERYONE who has helped us since the twins birth. Its been a lot of work and I know we could not have done it without all of your help. See ya in like 6 hrs!

Sunday 9/2/07

Ok,a little setback as of today. We will not be coming home today (which is better in my opinion for her since its a holiday weekend). She is having trouble keeping food down again. Last night she would not eat but a couple of sips at a time. The doctors came in today and they think it is acid reflux from the trauma of the surgery. They said it wont be there forever,I hope not.

The doctors said from a cardiac standpoint she is doing great and we would be headed home if it was not for the not eating issue so thats good. She looks good (pic is from this morning) and actually smiled yesterday. That was nice,it was the first time she had really smiled since we have been here and coming from a girl who is ALWAYS smiling it was nice to see that.

Anyway will keep you guys informed whenever any new news pops up,thanks for checking up on her and thanks for everything else too.

Saturday 9/1/07

Alrighty.............. . . .We finally got her to hold food down around midnight last night. We had to feed her like 5-10 cc (basically 1 swallow for us) then wait and repeat process until her stomach settled down enough to hold more. After hours of building up to a full 2 oz. she is looking good to go on the whole eating and not throwing up so thats awesome.

They came in and took the drain tube out a min. ago and gave her some morphine so she is in lala land watching Baby Einstein right now , seems to be enjoying herself at the moment :) They said we could go home tomorrow if she remains stable tonight and no fluids build up where the drain used to be. I am happy about that and really want to go home myself but I'm not to keen on going back to Wichita on a weekend holiday with a sick baby because im sure every good doctor is yelling "fore" this weekend so we will discuss that tomorrow with the doc.

Well,thats about it for now. We are all fine and cant wait to get home,she still has some recovering to do but at least she will be more comfortable at her house. I will keep posting even after we get home until she is 100%.

We would like to thank everyone who has helped us in every way. Im not gonna even try to name all of you because SO many people,churches,companys,etc have helped us I'm sure I would forget someone. Thank you all and you will never know how much we appreciate it.We could not have made it through somthing like this without good friends and family helping us and we want to thank everyone again and again.

This is a pic I took about 30 min ago. She is finally looking relaxed and more like Jordy again.

Once again,thank you all and we will be home in a couple of days we hope.